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Institutionalization: A Continuation of Family Care
Donald E. Stull
University of Akron
Janet Cosbey
Eastern Illinois University
Karen Bowman
Case Western Reserve University
William McNutt
Benjamin Rose Institute
It is often assumed that with institutionalization comes an end to family caregiving. The goal of this study is to show that family caregiving continues even after institutionalization of the care recipient. The data come from 81 families who institutionalized their elders. The findings indicate that families remain involved in the care of the elder after institutionalization, although to a lesser degree and in different ways. Involvement in personal care tasks is reduced, not termi nated ; involvement in the specialized needs of the elder, such as their financial and legal concerns, continues, along with the new role of advocacy. The effects of caregiving are still felt by the primary caregiver, as are the effects of institutionalizing the care recipient.
Journal of Applied Gerontology, Vol. 16, No. 4,
379-402 (1997)
DOI: 10.1177/073346489701600401
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