Advanced Search

Journal Navigation

Journal Home

Subscriptions

Archive

Contact Us

Table of Contents

Click here for more information

CiteULike is a free service for managing and discovering scholarly references - click here to get started.

Sign In to gain access to subscriptions and/or personal tools.
Journal of Applied Gerontology
This Article
Right arrow Full Text (PDF)
Right arrow References
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Right arrow Citation Map
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in Web of Science
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via Web of Science (9)
Right arrow Citing Articles via Google Scholar
Right arrow Citing Articles via Scopus
Google Scholar
Right arrow Articles by Caron, C. D.
Right arrow Articles by Arcand, M.
Right arrow Search for Related Content
Social Bookmarking
Add to CiteULike   Add to Complore   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati   Add to Twitter  
What's this?

Decision Making at the End of Life in Dementia: How Family Caregivers Perceive Their Interactions With Health Care Providers in Long-Term-Care Settings

Chantal D. Caron

University of Sherbrooke

Jennifer Griffith

Research Centre on Aging, Sherbrooke

Marcel Arcand

University of Sherbrooke

Makingend-of-lifecare decisions in the context of dementiais complex. As people with advanced dementia are in capable of deciding about their own care, family caregivers often become involved with health care providers in the decision-making process to ensure the best care for their loved one. Using a grounded theory approach, the experience of family caregivers in making such end-of-life care decisions was explored. Twenty-four caregivers were interviewed. The results show that caregivers evoke five dimensions when considering these decisions. One dimension, the relationship with health care providers, emerged as vital to their experience. Four elements of this relationship are presented in this article: quality of the relationship, frequency of contact, congruence of their values and beliefs with those of health care providers, and the level of trust. In an era that promotes partnership with families in long-term-care settings, care standards are needed in order to guarantee family participation in achieving quality dementia care.

Key Words: dementia • palliative care • family caregivers • decision making

Journal of Applied Gerontology, Vol. 24, No. 3, 231-247 (2005)
DOI: 10.1177/0733464805275766
Add to CiteULike CiteULike   Add to Complore Complore   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati   Add to Twitter Twitter    What's this?


This article has been cited by other articles:


Home page
 J Aging HealthHome page
L. M. Murray and S. Boyd
Protecting Personhood and Achieving Quality of Life for Older Adults With Dementia in the U.S. Health Care System
J Aging Health, April 1, 2009; 21(2): 350 - 373.
[Abstract] [PDF]

Home page
 Palliat MedHome page
A. Docherty, A. Owens, M. Asadi-Lari, R. Petchey, J. Williams, and Y. H Carter
Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review
Palliative Medicine, March 1, 2008; 22(2): 153 - 171.
[Abstract] [PDF]

Home page
 GerontologistHome page
M. E. Szinovacz and A. Davey
Changes in Adult Child Caregiver Networks
Gerontologist, June 1, 2007; 47(3): 280 - 295.
[Abstract] [Full Text] [PDF]